You may think of the JDRF for their research for a cure for type 1 diabetes, their work with the artificial pancreas and their annual fundraising walks throughout the country. However, they also focus efforts on advocacy in the form of their Promise to Remember Me meetings with congressmen and women and their bi-annual Children’s Congress in Washington, D.C.
According to the JDRF website, “Every two years, more than 150 children living with type 1 diabetes (T1D) gather in Washington, D.C., to meet face-to-face with some of the top decision-makers in the U.S. government. The children, ages 4 to 17, represent all 50 states and the District of Columbia. The delegates in JDRF’s Children’s Congress enjoy a once-in-a-lifetime opportunity to help Members of Congress understand what life with T1D is like and why research to fund life-changing therapies until a cure can be found is so critical. They speak up on behalf of the millions of people living with T1D and the families and friends who love them.”
Avery Addington and her mom Hallie, author of the website The Princess and the Pump, were chosen to attend JDRF’s Children’s Congress a few years ago when Avery was seven years old. They share their experience with us below. First we hear from Hallie.
Leighann: In what ways, if any, are you active with your local JDRF chapter?
Hallie: I am a board member for our local JDRF. In the past, I was the Government Relations person for our chapter. I’m now on our advisory council and am involved in lots of different events like the walks, galas and other outreach events. I’m also a mentor and Avery is a youth ambassador.
Leighann: What made you and Avery interested in applying for the Children’s Congress?
Hallie: Avery fell in love with Washington, D.C. when she went to Government Day with me when I was the Government Relations person for our chapter. Continue reading